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Florida Newborn Screening Program - Parent Resources

 

Hearing Screening Information:

Educational videos, Frequently Asked Questions, and brochures are available on our Hearing Resources page.

Insurance

Concerns about state-sponsored insurance for children should be directed to the Florida KidCare program.

Questions

A Disorder List with Symptoms is available in a family-friendly question-and-answer format about each disease. The disorder list may also be downloaded and printed in English, Spanish, and Creole. Brochures may also be ordered in bulk at no charge.

Frequently Asked Questions by new parents about the screening and results have been answered. These questions may also be downloaded and printed in English, Spanish, and Creole.

The Florida Resource Guide for Families of Young Children with Hearing Loss is an excellent resource for parents of a young child diagnosed with partial or total hearing loss. The guide covers testing, communication exercises, intervention resources available, available technology, an advocacy chapter and much more. The guide may be downloaded and printed in English, Spanish, and Creole.  Copies may also be ordered at no cost.

 Regional Genetics/Endocrine Centers

Doctors and nurses at these centers specialize in treating infants with genetic and endocrine disorders. They will do follow-up testing, give you more information, answer questions and provide treatment.

Genetic and endocrine referral center areas can be shown in our coverage map.

Sickle Cell Disease Referral Centers

Doctors and nurses at the hematology/oncology centers specialize in treating Sickle Cell Disease and other blood conditions. They can provide follow-up information, answer your questions and treat your baby.
The sickle cell referral center areas can be seen in our hematology coverage map.

Cystic Fibrosis Referral Centers
Cystic Fibrosis referral center areas can be shown in our coverage map.
   
This page was last modified on: 11/6/2012 11:07:53