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Organization
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Description
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Link
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Agency for Persons with Disabilities
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The APD works in partnership with local communities and private providers to assist people who have
developmental disabilities and their families. APD also provides assistance in identifying the needs
of people with developmental disabilities for supports and services.
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http://apd.myflorida.com
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Centers for Disease Control and Prevention/National Center for Birth Defects and Developmental Disabilities
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Tools and information about birth defects for families including Down Syndrome and Autism.
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http://www.cdc.gov/ncbddd/index.html
http://www.cdc.gov/ncbddd
/birthdefects/families.html
http://www.cdc.gov/ncbddd/
birthdefects/DownSyndrome.html
http://www.cdc.gov/ncbddd/autism/index.html
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Children's Medical Services (CMS), Florida Department of Health
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CMS is a collection of special programs for eligible children with special needs. CMS has a
variety of services for expecting moms, newborn babies, infants and toddlers, school-aged children,
adolescents and young adults. All of the CMS services are provided by highly qualified physicians,
nurses, social workers and other health care providers around the state.
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http://www.cms-kids.com
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Family Health Line
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Family Health Line is a statewide free hotline offering counseling information and referrals about
pregnancy, infant and toddler issues. The goal of the hotline is to improve the health status of
Florida's pregnant women and their children by providing callers with information on helpful community
resources and answering basic questions about pregnancy, breastfeeding, childbirth education and other
pregnancy-related concerns.
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http://211bigbend.net/hotlines/
family-health-line.html
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Federal Health Information Centers and Clearinghouses
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National Dissemination Center for Children with DISABILITIES
Clearinghouse on DISABILITY Information
National Center for the Dissemination of DISABILITY Research
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http://www.health.gov/nhic/pubs/
2011clearinghouses/clearinghouses1.htm
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Florida Birth Defects Registry, Florida Department of Health
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The Florida Birth Defects Registry (FBDR) is a statewide, population-based surveillance system that
has identified birth defects in children born in Florida since 1999. The website includes a family
support page, FAQs and additional resources.
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http://www.fbdr.org/Families/support.html
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Florida Developmental Disabilities Council (FDDC)
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The FDDC is a non-profit organization that supports innovative initiatives that demonstrate new
approaches to enhance the independence, productivity, inclusion and self-determination of individuals
with developmental disabilities in all facets of community life.
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http://www.fddc.org/publications
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Florida Directory of Early Childhood Services (Central Directory)
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A statewide, not-for-profit membership organization which provides a service-based clearinghouse of
information, data, research, advocacy, direct services and training for early care and education.
The Children's Forum is governed by a volunteer Board of Directors with expertise in their respective
disciplines and a commitment to early care and education as well as school-age services.
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http://www.centraldirectory.org
http://www.thechildrensforum.com
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March of Dimes
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Non-profit national organization that works to improve the health of babies by preventing birth
defects, premature birth, and infant mortality through research, community services, education and advocacy.
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http://www.marchofdimes.com/baby/
birthdefects.html
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National Center for Prenatal and Postnatal Down Syndrome Resources
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The National Center for Prenatal and Postnatal Down Syndrome Resources at the University of Kentucky's
Human Development Institute oversees three medically reviewed programs that complement each other in
providing important resources and information for new and expectant parents learning about a diagnosis
of Down syndrome: Brighter Tomorrows, Lettercase, and Down Syndrome Pregnancy.
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http://www.downsyndromediagnosis.org
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National Birth Defects Prevention Network (NBDPN)
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The NBDPN is a volunteer-based organization that addresses the issues of birth defects surveillance,
research and prevention under one umbrella by maintaining a national network of state and population-based
birth defects programs. Members include public health officials, epidemiologists, academics, parents, and
others committed to understanding factors that may lead to birth defects, identifying strategies for
reducing birth defects, and working to prevent potential secondary disabilities.
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http://www.nbdpn.org/index.php
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National Down Syndrome Society
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The NBDPN is a volunteer-based organization that addresses the issues of birth defects surveillance,
research and prevention under one umbrella by maintaining a national network of state and
population-based birth defects programs. Members include public health officials, epidemiologists,
academics, parents, and others committed to understanding factors that may lead to birth defects,
identifying strategies for reducing birth defects, and working to prevent potential secondary disabilities.
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http://www.nbdpn.org/index.php
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National Down Syndrome Society
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National advocate for the value, acceptance and inclusion of people with Down syndrome.
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http://www.ndss.org
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