Requests for PRAMS Data Sets
To facilitate the planning and implementation of analyses, ensure scientific
quality and appropriate use of the data, and avoid duplication of efforts, any
researcher intending to analyze Florida (FL) PRAMS data must submit the
A brief research
proposal, to the FL PRAMS Coordinator at 4052 Bald Cypress Way, Bin A-12,
Tallahassee, FL 32399-1720.
Please see the
Format for Proposal document for proposal guidelines.
Researchers should consult with the Ethics and
Human Research Protection Program to determine whether
their proposed research warrants review by the
FL Department of Health (DOH) Institutional Review Boards (IRB). A request for
consultation can be submitted online at
Distinguishing Public Health Practice and Quality Improvement from Research.
Upon receipt of approval by the FL PRAMS team (and the DOH IRB, if necessary),
all researchers who are listed on the proposal will complete a
Data Sharing Agreement and return the form to the FL PRAMS Coordinator.
Mail or fax research proposals and signed data sharing agreements to:
FL PRAMS Coordinator
Bureau of Epidemiology
Florida Department of Health
4052 Bald Cypress Way, Bin A-12
Tallahassee, FL 32303-1720
Phone: (850) 245-4444
Fax: (850) 922-9299
and Approval Process
Proposals will be
circulated among the FL PRAMS team to solicit input regarding the suitability
of PRAMS data for the proposed analysis and the appropriateness of the
analysis plan considering the PRAMS survey design. A select set of variables
will be released to the researcher upon approval by the PRAMS team. The
variables are limited to non-identifiable variables. Examples of variables
that will not be included in the dataset include: mother's date of birth,
infant's day of birth, hospital of birth, maternal zip code, maternal and
paternal places of birth, birth certificate number, and PRAMS interviewer
identification number. Researchers who request variables that are not included
in the public use dataset might have to seek approval from other DOH offices.
The PRAMS team will contact these other DOH offices, as necessary.
The PRAMS team will
respond to the primary researcher within three weeks. This response will
include a summary of comments received from the PRAMS team and notification of
approval or disapproval to conduct the analysis.
Upon receipt of FL PRAMS
team approval, all researchers who are listed on the proposal will complete a
Data Sharing Agreement
and return the form to the FL PRAMS Project Coordinator. Approval to analyze
FL PRAMS data applies only to the topic described in the research proposal. If
a researcher desires to conduct additional analyses, a separate research
proposal is required. The Data Sharing Agreement will require final approval
from the FL PRAMS Project Director at the Bureau of Epidemiology.
FL PRAMS will create a
SAS analysis data set with de-identified information for the primary
researcher on a password-protected CD ROM. A codebook, describing the variable
name, variable label, associated SAS format, and response codes will accompany
the SAS dataset. The source of the variable (questionnaire, birth certificate,
operations, weights) will be included as well. A letter describing the
contents of the CD ROM will accompany the data. The data will be zipped using
WinZip software, and password protected, so that only the intended recipient
will be able to unzip the files.
Once the analysis
described in the research proposal has been completed, researchers must
destroy their copy of the data (confirmed in writing to FL PRAMS) and/or
return the data to FL PRAMS.
Because PRAMS is a collaborative effort between the FL DOH and CDCs Division of
Reproductive Health, both FL DOH and CDC representatives should be acknowledged
Florida Department of Health Bureau of Epidemiology PRAMS Team and Bureau of
Vital Statistics. The CDC PRAMS Team, Program Services and Development Branch,
Division of Reproductive Health.
In addition, authorship of all articles and journal submissions shall be
negotiated based on the amount of time, consultation, collaboration, and
technical support provided by FL PRAMS staff and the primary investigator(s).
Publication or Presentation
Before giving an oral presentation using FL PRAMS data, researchers must submit
their slides and abstract to the FL PRAMS team two weeks prior to the
Before submitting a manuscript for publication, researchers are required to
submit copies of their work to the FL PRAMS team four weeks prior to submitting
the manuscript to a peer reviewed journal.